The ethics and governance of human genetic databases

European perspectives
  • 283 Pages
  • 4.97 MB
  • 4406 Downloads
  • English

Cambridge University Press , Cambridge, New York
Human genetics -- Databases -- Moral and ethical as
Statementedited by Matti Häyry ... [et al.]
SeriesCambridge law, medicine, and ethics
ContributionsHäyry, Matti
Classifications
LC ClassificationsQH438.7 .E84 2007
The Physical Object
Paginationxi, 283 p. ;
ID Numbers
Open LibraryOL17229667M
ISBN 100521856620
ISBN 139780521856621

THE ETHICS AND GOVERNANCE OF HUMAN DATABASES is a very worthy book which addresses issues that are opening up everyday - sometimes under our feet." --Ricardo Chueca, Department of Law, University of La Rioja, Spain, The Law and Politics Book ReviewCited by: The Ethics and Governance of Human Genetic Databases European Perspectives The Medical Biobank of Umea˚ in Sweden, deCODE’s Health Sector Database in Iceland, the Estonian Genome Project and the UK Biobank were planned to contain health data and genetic data from large eresour.

Professor Bernice Elger teaches health law and bioethics at the Institute of Legal Medicine, University of Geneva. She is a member of an international collaboration project on ethical issues of human genetic databases, with involvement of the Department of Ethics, Trade, Human Rights and Health Law at the World Health Organization (WHO) headquarters in Geneva, a member of the subcommission who Cited by: The Ethics and Governance of Human Genetic Databases European Perspectives The Medical Biobank of Umea˚ in Sweden, deCODE’s Health Sector Database in Iceland, the Estonian Genome Project and the UK Biobank.

The Ethics and Governance of Human Genetic Databases The Medical Biobank of Umeå in Sweden, deCODE's Health Sector Database in Iceland, the Estonian Genome Project and the UK Biobank contain health data and genetic data from large populations. Some include genealogical or. The Ethics and Governance of Human Genetic Databases The Medical Biobank of Umeå in Sweden, deCODE’s Health Sector Database in Iceland, the Estonian Genome Project and the UK Biobank contain health data and genetic data from large populations.

Some include genealogical or lifestyle information. CLICK HERE FOR MEDICAL BOOKS FREE DOWNLOAD FOR THOSE MEMBERS WITH BLOCKED DOWNLOAD LINKS. The Ethics and Governance of Human Genetic Databases Genetics. Jan 10 The Medical Biobank of Umeå in Sweden, deCODE’s Health Sector Database in Iceland, the Estonian Genome Project and the UK Biobank contain health data and genetic data from.

The Ethics and Governance of Human Genetic Databases; European Perspectives, by M.

Description The ethics and governance of human genetic databases PDF

Häyry, R. Chadwick, V. Árnason, and G. Árnason. Request PDF | The ethics and governance of human genetic databases: European perspectives | The investigation of ELSAGEN (Ethical, Legal and Social Aspects of Human Genetic Databases.

The Ethics and Governance of Human Databases is a very worthy book which addresses issues that are opening up every day - sometimes under our feet.' Law and Politics Book Review 'The book presents a truly interdisciplinary investigation containing, as it does, input from disciplines of philosophy, law and : Gardar Árnason Matti Häyry, Ruth Chadwick, Vilhjálmur Árnason.

Visit to get more information about this book, to buy it in print, or to download it as a free PDF. Human Genetic Variation and Defining “Normal” and “Natural” Science, Ethics, and Governance.

Washington, DC: The National Academies Press. doi: /   African Studies American Studies Ancient Near East and Egypt Art History Asian Studies Book History and Cartography Biblical Studies Classical Studies Education Author: Gevers. The Ethics and Governance of Human Databases is a very worthy book which addresses issues that are opening up every day - Law and Politics Book Review 'The book presents a truly interdisciplinary investigation containing, as it does, input from disciplines of philosophy, law and sociology.

Buy The Ethics and Governance of Human Genetic Databases: European Perspectives, by Matti Hayry, Ruth Chadwick, Vilhjalmur Arnasun, Gardar Arnason, ISBNpublished by Cambridge University Press fromthe World's Legal Bookshop.

Shipping in the UK is free. Competitive shipping rates world-wide. For those of you perhaps unfamiliar with the existence of human genetic databases, they are exciting, but controversial, endeavours by some countries to build upon the successful mapping of the human organisers and funders of genetic or DNA databases (DNA databanks) aim to collect and store the DNA of individuals alongside their physical, emotional, familial, lifestyle and.

The Ethics and Governance of Human Genetic Databases. European Perspectives, pp. – Cambridge University Press, Cambridge () CrossRef Google ScholarCited by: 4. Professor Bernice Elger teaches health law and bioethics at the Institute of Legal Medicine, University of Geneva. She is a member of an international collaboration project on ethical issues of human genetic databases, with involvement of the Department of Ethics, Trade, Human Rights and Health Law at the World Health Organization (WHO) headquarters in Geneva, a member of the subcommission who.

List of contributors -- 1. Introduction: some lessons of ELSAGEN / Vilhjálmur Árnason -- Pt. Background -- 2. On human genetic databases / Gardar Árnason -- 3. American principles, European values and the mezzanine rules of ethical genetic databanking / Matti Häyry and Tuija Takala -- 4. The languages of privacy / Salvör Nordal -- Pt.

Social concerns -- 5. Read "Ethical Issues of Human Genetic Databases A Challenge to Classical Health Research Ethics?" by Bernice Elger available from Rakuten Kobo.

Following the boom in population databases in recent years there has been sustained and intense international debate abo Brand: Taylor And Francis. Cambridge Law, Medicine and Ethics, No.

4; Cambridge University Press:pp. Th is book is about the social, ethical and legal aspects of human population genetic databases, i.e.

Details The ethics and governance of human genetic databases PDF

collections of genetic, medical and, in some cases, genea- logical and/or life style data from a large number of people, arranged in a system- atic way so as to make them suitable for medical : Gevers. Human genetic databases raise many ethical, legal and social questions.

In this book, first published inbioethics scholars examine whether existing ethical frameworks and social policies adequately reflect people's concerns, and how these frameworks and policies may need to change in light of new scientific and technological developments. Human Genome Editing: Science, Ethics, and Governance PREPUBLICATION COPY—SUBJECT TO FURTHER EDITORIAL REVISION COMMITTEE ON HUMAN GENE EDITING: SCIENTIFIC, MEDICAL, AND ETHICAL CONSIDERATIONS R.

ALTA CHARO (Co-Chair), Sheldon B. Lubar Distinguished Chair and Warren P. Knowles Professor of Law & Bioethics, University of.

- The Ethics and Governance of Human Genetic Databases: European Perspectives Edited by Matti Hayry, Ruth Chadwick, Vilhjalmur Arnason and Gardar Arnason. Human genetics poses new political issues for the governance systems of the EU and, in so doing, graphically illustrates the regulatory problematic of innovative health technologies (IHTs).

Ethical Issues of Human Genetic Databases. Ethical Issues of Human Genetic Databases book. identifies areas of consensus and controversy while investigating the challenges posed to classical health research ethics by the existence of genetic databases, analyzing the reasons for such varying guidelines.

Cited by: Read the full-text online edition of Ethical Issues of Human Genetic Databases: A Challenge to Classical Health Research Ethics.

Home» Browse» Books» Book details, Ethical Issues of Human Genetic Databases: A. Genetic governance is at the heart of medical and scientific developments, and is connected to global exploitation, issues of commodification, commercialisation and ownership, the concepts of property and intellectual property and concerns about individual and communal identity.

M Hayry, R Chadwick, V Arnason and G Arnason, The Ethics and Governance of Human Genetic Databases: European Perspectives (CUP, Cambridge ). 7 A Capron, A Mauron, B Elger, A Boggio, A Ganguli-Mittra and N Biller-Andorno, ‘Ethical Norms and International Governance of Genetic Databases and Biobanks: Findings from an International Study.

Genetics and ethics in global perspective / by: Wertz, Dorothy C. Published: () The ethics and governance of human genetic databases: European perspectives / Published: () Genetic ethics: Do the ends justify the genes.

Download The ethics and governance of human genetic databases PDF

/ Published: (). The word caught on in agriculture, but the notion gained even wider popularity through science fiction, as many authors extended the idea from plants to making copies of human beings.

2 One of the most influential books of this kind has been Aldous Huxley’s Brave New World, published in The story involves cloning humans by embryo Cited by: 3. The Medical Biobank of Umeå in Sweden, deCODE's Health Sector Database in Iceland, the Estonian Genome Project and the UK Biobank contain health data and genetic data from large populations.

Some include genealogical or lifestyle information. They. Under the heading 'Implementing Genetic Database Governance', it contains four socio-legal articles prefaced by an introductory paper, plus a book review by Gertz of 'The Ethics and Governance of Human Genetic Databases: European Perspectives', a substantial new work edited by Hayry, Chadwick, Arnason and Arnason.The volume identifies areas of consensus and controversy while investigating the challenges posed to classical health research ethics by the existence of genetic databases, analyzing the reasons for such varying guidelines.

The book will be essential to academics, biobankers, policy-makers and researchers in the field of medical : Taylor And Francis.